Monday, June 17, 2013

Clinica Nutricion y Vida (The Gerson Clinic in Tijuana, Mexico)

Maybe I should start with the common question.  What is the Gerson Therapy?  I will answer this question by quoting straight from their website at http://gerson.org/gerpress/the-gerson-therapy/.

"The Gerson Therapy is a natural treatment that activates the body’s extraordinary ability to heal itself through an organic, vegetarian diet, raw juices, coffee enemas and natural supplements.
With its whole-body approach to healing, the Gerson Therapy naturally reactivates your body’s magnificent ability to heal itself – with no damaging side effects. This a powerful, natural treatment boosts the body’s own immune system to heal cancer, arthritis, heart disease, allergies, and many other degenerative diseases. Dr. Max Gerson developed the Gerson Therapy in the 1930s, initially as a treatment for his own debilitating migraines, and eventually as a treatment for degenerative diseases such as skin tuberculosis, diabetes and, most famously (and recently), cancer.
The Gerson Therapy‘s all-encompassing nature sets it apart from most other treatment methods. The Gerson Therapy effectively treats a wide range of different ailments because it restores the body’s incredible ability to heal itself. Rather than treating only the symptoms of a particular disease, the Gerson Therapy treats the causes of most degenerative diseases: toxicity and nutritional deficiency.
An abundance of nutrients from copious amounts of fresh, organic juices are consumed every day, providing your body with a super-dose of enzymes, minerals and nutrients. These substances then break down diseased tissue in the body, while coffee enemas aid in eliminating toxins from the liver.

Throughout our lives our bodies are being filled with a variety of carcinogens and toxic pollutants. These toxins reach us through the air we breathe, the food we eat, the medicines we take and the water we drink. The Gerson Therapy’s intensive detoxification regimen eliminates these toxins from the body, so that true healing can begin."

Once again, the above information and more was taken directly from the Gerson Website at: http://gerson.org/gerpress/the-gerson-therapy/

Mom and I packed and headed to San Diego to visit the Gerson Clinic in Mexico on May 8, 2013.  We stayed the night in San Diego with a cousin and her sweet family.  It was good to connect with them.  We were up early the next morning to meet our shuttle to Tijuana.

We were to meet the shuttle at a local hotel where another couple were staying and also catch a ride to the clinic.  The shuttle driver was named Jay and he was a hoot.  He was very personable and funny.  We got to the clinic in one piece and without a hitch.

Clinica Nutricion Y Vida
The facility was beautiful and I can see why they chose this location for healing.  Anyhow, I kept a journal of sort of my stay there, and here's what I had to say in the moment.  (TMI disclosure and warning:  If you are squeamish when speaking about bowel movements or other bodily functions, please refrain from reading the following.  This may be Too Much Information for you!)

Barb and Warren
Day 1   May 9, 2013

We came to the clinic on the shuttle with another patient  (Barbara) and her companion/husband (Warren).  Jay (the man that runs the shuttle) was speaking about coincidences in his work with Gerson, and it was funny we found one of our own as patients.  Barb was born and raised in Boise and now resides in St. George, UT.  It was too funny!

When we got here we settled in right away.  Soon after this we met with the doctor (Dr. Pedro Cervantes Macchetto).  He went through my medical history extensively and then based on this gave me a schedule for my enemas, juices, and supplements.  10 juices to start and then 3 enemas a day to be started right away.  He was very thorough.  He even prescribed rest.  In his words, "**Rest is super duper super important**". He is a very funny man and seems passionate about what he does.

I had my first enema right before lunch.  Not so bad, but some cramping.  Glad it is so close to the bathroom.  Seems easy enough.  We will have to perfect it if I need to start doing this by myself at home or even possibly work.

We have meals at 8am, 1pm, and 6pm.  The food is wonderful.  Lots of veggies prepared in a multitude of different ways.  I can't wait to learn their techniques.  Lots of fruit as well.  Yay!  Missed my fruit.

Our first meal was lunch, and everyone is soooo wonderful!  Very welcoming and happy to see new comers.  I feel a connection with them all.  I feel so blessed.  This is where I need to be for sure.

Excited for next week.  Charlotte Gerson will be here on Wednesday and give us a lecture.  She seems like a fun woman.  Our shuttle driver described her as "honest to a fault".  Excited for this as this is what we need.

(Charlotte Gerson is the founder of the Gerson Institute and the daughter of Dr. Max Gerson who first came up with the Gerson therapy.)

Day 2, May 10

Rise and shine at 6am.  Vitals done first, and then coffee enema at 7am.  I had to have blood drawn today as I forgot to fast yesterday morning.  Oh well.

Lovely breakfast with fun people again, and then I stayed in the courtyard and chatted with a few.  Everyone brings a story and their own experiences.  Such an encouraging group and so supportive!

They offer yoga on Fridays, but I went back to the room and skipped yoga.  I was so exhausted.  :/. Rest is really needed especially after a double mastectomy!  

Dr. Cervantes came to find us and go over our blood results with us.  That was fast.  Here they are.  Not bad.




The enemas aren't so bad.  The trick is to occupy your mind with something else.  Keep your smart phone in hand and browse the Internet or something!  Cramping seems a bit less today.

A new patient arrived today.  Her name if Fatima, but she goes by Pat.  She is Filipino   She is an RN and she too has breast cancer.  She caught it very early.  Just a lumpectomy was performed, and I think she kept all of her lymph nodes.  She came with her sister Violeta.
Me, Violeta, Mom, and Fatima
I watched an excellent movie/documentary today called "Dying to Have Known".  It was so well done and gave me lots of hope.  I highly recommend it to anyone and everyone!

My sweet cousin Brandi made a beautiful poster for the Race for the Cure run/walk.  She is awesome and this touches me very much.  I am so lucky to have so much support and love from so many different people.

Day 3, May 11

Coffee enemas aren't so bad when watching funny YouTube videos.  Laughing helps you through it for sure!  Mom said that she read somewhere that 15 minutes of laughing is comparable to 2 hrs of sleep.  I need to laugh more because sleep is sometimes hard to get.  Plus it makes you feel so good.

We had a lecture by Dr. Cervantes today about the Gerson diet in general.  He went through the juices, the supplements, and the enemas in detail.  He also touched on castor oil orally and rectally as well.  I am not to do castor oil until I have healed more from my surgery.  It can be very powerful.  He also spoke on castor oil topically for pain.   Clay packs were talked about as well.  It is very good on swelling and lymph edema, etc.  again it should not be used until I have healed a bit more as it is know to pull the toxins out of the skin and loosen the healed areas.

A couple other fun things he mentioned was that people who eat this type of diet have much nicer skin.  He said that some age spots and disappear altogether.  He also mentioned that you begin to feel old hurts.  He said this happens because your body remembers the hurts, and it is trying to heal it better and fix the old hurts.  I don't know about the old hurts yet, but I am feeling much more tender at my new surgical site, and I'm wondering if that means I'm healing wicker than I was before.  Who knows.  

He also made a point to tell us that at first when your body is detoxing, you may have rashes and acne and a very potent smell.  He said that Often times when you detox it will come through your skin, and that is why they recommend you not wear any lotions, deodorants  or other beauty products that could prevent the detoxing and cause clogged pores to boot.  
Dr. Cervantes Macchetto doing his presentation.  This is the point where he does his Elvis impression. ;)
A new patient arrived today from Australia.  She is quite young and has melanoma.  She has a 14 yr. old, a 16 yr. old, and an 18 yr. old.  She is brave to come here.  This will give her hope and heal what others have told her is unhealable.  Melanoma has a good success rate here since it is untreatable with chemo.  Melanoma patients haven't been poisoned first by the chemo and then sent here as a last try at life.
Angie and her "mum" Val
Day 4, May 12

It is very hard to sleep here with the weird noises and back aches, etc.   I took two Valerian root herbal pills last night to help with sleep, but it didn't seem to help much.  I finally got in the recliner in our room and was able to sleep a bit better there.  I think I'll try a castor oil pack on my back tonight to see if it will help.

It is Mother's Day today.  Lucky to be here with my mom.  We walked to the beach with a couple others today, and that was nice.  It was very foggy, so you couldn't see very far.  I will have to go again and hopefully it will be nicer.
Me and Mom on the beach
I got to know Angie (the patient from Australia) and her mother a bit better today.  They are very nice and are a great addition here.  She has a lot to offer and bring to the group.

Mom and I also had a great talk with the sweetest couple named Donna and Terry today.  Terry was diagnosed with Mesothelioma and has an amazing life story to go with it.  He was in the navy (where he contracted the disease), and they have lived all over the world.  He also went to Harvard and got his business degree.  Donna is equally amazing raising their children while Terry was out of town for the Navy.
Terry and Donna
Anyhow, they shared with us their inability to keep a pregnancy due to a heart shaped uterus.  She had five pregnancies, but only two boys survived.  They did adopt a little girl later.  They shared their faith in God with us and it was amazing.  What a great couple to learn from.  They also do couples counseling through their church.  Wow!

One thing that I have gotten from my diagnosis is an appreciation of God.  With so many friends and family showing their love and support,  I know I'm the luckiest girl around.  I have a greater appreciation for God and all of his children.  I also now know that I'm supposed to help others in some way.  Maybe through my personal experience, and maybe in other ways as well. 

Day 5, May 13

I seriously love all the patients and companions here right now.  I am so blessed to be here with this great group of people.  They are all so willing to share their experiences and help with problems.  Angie's mom had an extra pair of ear plugs, so she gave to me!  Yay!

Saw Dr. Cervantes today.  He asked if I was having any troubles.  Told him about my sleeping.  Told him sitting up helps a bit and I slept better last night.  He recommended castor oil as well for my back pain.

Rosa left today.  She speaks mainly Spanish and lives in Southern California. She has inflammatory breast cancer.  She had a left mastectomy, chemo, and radiation done.  She is a sweet woman for sure.  Very strong as well.  She came down with her friend Maru.  Both very sweet women. Even with the language barrier, there was a strong connection.
Me and Rosa
Mom has been very organized.  She has collected the Information for all of the patients and companions so we can keep in touch.  Yay!  Love Mom!

I have officially gotten an invitation to go and visit Angie in Perth, Australia.  I will do it one day too.  First though I  get myself healthy and through the next two years, and then we're off!

David the brother of Bruce (a patient with prostate cancer) said that he's going to come visit all of the patients he meets here.  I think that would be so fun!  I think I may just do the same thing.
David and Bruce
This seems to be such a wonderful place to heal from all Chronic illnesses.  Such a good track record and especially with autoimmune diseases.  It is amazing what food does for the body. 


“Let food be thy medicine and medicine be thy food”― Hippocrates

Oh, I have officially moved from 10 drinks a day to 13 drinks a day.  Also, I will have 4 coffee enemas instead of 3.  That is exciting around here.  The joke is to have more juice and more enemas.  This just means you are getting healthy enough to heal at a faster rate.  

Also, bring on the healing reactions.  This just means a big response to the detox like lots of pain at the site of a tumor, etc.  This is exciting for us because when your body starts to attack a tumor, the tumor will get inflamed and painful and then start to break down.  It slowly dissolves, but it is painful, especially if it is in bone or a brain tumor, etc.  

Day 6, May 14

The ear plugs did help a bit.  I still woke to go to the bathroom, but seems I slept a bit more soundly.  Just took some time to fall asleep again.  The point is I did fall asleep again!

I walked to beach after breakfast today.  Not quite so foggy today as on Mother's Day.  Val came with us.  She Is a sweet woman.  We compared the names for plants the whole way there and back. The names can sometimes be so different from country to country.  We also saw some very cool buildings.  Very beautiful, but the sad thing is all of the trash and graffiti.  Makes it look trashy when it could be so beautiful.

I feel quite full most of the time.  It is hard to eat as much, so I try not to eat as much.  The hot pack with castor oil is very relaxing too.  Helps with the back pain.

Charlotte Gerson will be here tomorrow.  I'm quite excited.  It will be interesting to see what she is like in person.  She seems highly intelligent and of such good health for 91 years old.  Makes me wonder how long this spunky thing will be around to teach the world.

Today I heard that Angelina Jolie has gotten a double mastectomy because she tested positive for he BRAC-1 gene.  Not sure how I feel about that.  Did she do it for pure prevention?  Did she do it to help those that created the test make money?  Did she consider changing her life style before mutilating her body?  Prevention is good.  Just not sure about this type of prevention.  In the end a person should do what they feel is right for them.  

Day 7, May 15

Charlotte Gerson was amazing.  She came with her daughter Margaret (often called Peggy).  Her daughter was amazing as well.  Must run in the family.
Charlotte and Peggy (Photo taken from the Gerson Institute's Newsletter Healing News)
She truly was honest in every way.  Not sure if I would call it honest to a fault, but others could interpret it that way.  For a 91 year old woman she sure is bright and with it.  She sure had a sense if humor too.  She could make you laugh as well.  She wasn't afraid to call you out on little things like hair dye, or make-up, or nail polish.  She would give you her opinion, and then she would let you ponder the rest on your own.  She was a very good speaker as well.  I guess with as much experience as she has had with it it shouldn't be a surprise.  We are definitely very lucky to have seen her.  What a talented family.
Charlotte, Me, and Mom
Day 8, May 16

Today I had very little appetite, and I really didn't feel great.  I felt bloated and irritable. I am told this is very common when you start the diet and that more cooked veggies will help.  I much preferred to be in my room than out of it.  Maybe that was me detoxing, who knows.  I felt bad enough that I started to cry when on the phone with Nick.  He told me how bad he had been eating and I chewed him out a bit and then he called me to make sure I was doing okay, which I wasn't...

Tomorrow I will start the castor oil enemas.  This consists of some oral castor oil around 6:30 am with some oral coffee to chase it down.  This is the only time oral coffee is allowed. Do the first enema like normal.  Then around 11:30 am you get your coffee enema with added castor oil and ox bile powder (used to emulsify the castor oil).  You are then to try to hold it, but it then states you will not be able to hold it...don't wait.  

Day 9, May 17

I gave another blood and urine sample today.  Maybe we will go over them with the doctor today or tomorrow.  Hopefully they are showing good stuff.

The oral castor oil and coffee chase wasn't horrible, but I can tell they are doing their job.  I have had some cramping, and I definitely want to be near a toilet.  I had a tiny bowel movement.  Now just waiting for the castor oil enema...

It wasn't as bad as everyone has said.  Maybe a bit more cramping with the enema, but not much.  Maybe next time it will be different.  I guess I will be doing this every other day, so we will see what happens.

On another note, I started niacin yesterday.  They held off for a while there since I had had surgery and it can cause bleeding.  It's been just over three weeks now.  Anyhow, I had a niacin flush and reaction with the itching at dinner.  Of course David noticed.  David and his stories... 

Day 10, May 18

Maybe I can go for a walk today.  Yesterday I didn't want to be too far from the toilet.  The beach sounds nice today though.

We got the blood results back.  It looks like there are slight improvements.  it seems like my body responds well to the therapy as it should be.  




It was a pretty typical day today.  Dr. Cervantes did a presentation on diabetes and the Gerson Therapy today.  Good information.  He is a funny guy.  He is a good person to have around for sure.

We did go for a walk.  I was laying in bed right after my 3 pm juice getting ready to take a nap, and I just sat up and asked Mom if she wanted to go.  She was game, so we left for about an hour.  We walked to the beach took our sandals off, and went all the way to the wall that separates the US and Mexico.  It was so nice.  The sun was shining, and even though there were a lot of people out, it was amazing!  The only bad thing, I'm pretty sure I got a sunburn on my face.  I should have worn my hat...
The wall that separates Mexico and the U.S.
Some cool art at the beach
Tomorrow, more castor oil.  Yay!

Day 11, May 19

So, I had my oral castor oil and coffee again this morning.  Not horrible I suppose.  I had my normal coffee enema afterwards.  No worries.  After breakfast I had a bit of cramping and a slightly loose stool.  This is abnormal while doing enemas with Gerson to have any type or normal bowel movement.  The enemas usually break it up and wash it out before you can have a normal bowel movement.  Anyhow, that seems like the only abnormal part of the the castor oil treatment so far...

Since it is Sunday, Ted will do a service for us today.  He is a companion for his wife Diane who has ovarian cancer and was pre-treated with chemotherapy.  They were missionaries in Africa for years before Diane's diagnosis.  So glad they have come.  They came after Rosa left.  They seem so amazing with their faith.

The service was different from what I'm used to.  We started off by singing a few different songs.  I wasn't familiar with any of them.  Ted and Diane seem to really get into them.  Very motivating.  Ted then gave his sermon .  It was about finding the light in the dark.  Basically finding out why we were given cancer as a gift.  Very good.

Terry (a mesothelioma patient) then spoke about us all being here at this time to learn from one another.  There is no doubt in my mind that he is right.  Everyone here is so inspiring and encouraging.  We are so blessed!  Maybe this is our light in the dark or even just a part of the light in the dark.

The castor oil today wasn't horrible.  There was one occasion after breakfast that I needed to use the toilet, but not horrible at all. 

Day 12, May 20

Today Steve and Heather will leave.  :(. So sad.  Steve has prostate cancer that metastasized to some bone (we know in the hip bone at least).  His sweet daughter Heather convinced him to come.  She is amazing.  He would be dead without her.  They didn't want to take him at all because of the painful way the bone heals, but because another patient had to cancel, they allowed him to take his place.  So glad we met them.  They have made the experience amazing for sure.

We were all so sad for them to leave.  They would have liked to stay longer, but it was not possible.  To make them happy and wish them well, Rochelle decided to sing the Star Gas jingle as a send off.  Then mom made her own verse with Rochelle's help.  We all sang it and did a little dance.  Steve had Terry read something for the whole group.  He thanked us all for the experience, and he gave a special thanks for his daughter Heather.  It was so beautiful and heartwarming.
Me, Mom, Steve, and Heather
We were all so sad to see them go, but we know he will get healthy now.  They were meant to be here with the rest of us and to teach us something.

We get live music in the courtyard today!  Yay!

The music was good.  I think it lifted everyone's spirits.  It was some jazzy blues type music.  There was a saxophone, a keyboard, and some shakers?  Anyhow, it was very nice.

Dinner was nice tonight.  We all had a lot of fun visiting afterwards.  I took a video of David's "niacin reaction" story he had at home with his wife.  So funny!  Mom wanted it to show to dad.  Can't wait!

Such fun people for sure.  I will miss them all when I go on Thursday, but will also be happy to be home.

Day 13, May 21

Day three of castor oil.  I felt the cramping a bit more today during breakfast, but still not bad at all.

It was a pretty lazy day for sure.  Mom went with a group of companions to Costco.  I told her to look for a thermos, but Costco didn't have any thermos.  Instead, they ended up going to another store to find some.  They made it back after lunch, but they were a bit late.

We met with the rep for all the meds we take everyday.  Thank goodness for Mom is all I can say.  I'm truly blessed to have parents that support me in so many ways.  

In two days I should be home with the boys again.  I miss them and I'm ready to be home.  This will be a very time intensive program, but I know that it will help.  Dr. Cervantes recommends that I stay home for a minimum of three months, and that when I go back, I go back only part-time to start.  We shall see...

Oh!  We got another couple that took Heather and Steve's room.  They are a beautiful couple from Nigeria.  They speak English very well.  The wife has breast cancer diagnosed in March.  She has not had any treatment at all not even surgery.  She is so brave!

Day 14, May 22

This is our last day here.  I saw Dr. Cervantes and he will start me on some thyroid meds and an extra CO Q10 at each meal.  He started me on a very small amount of thyroid to make sure that it doesn't affect me negatively.

I'm ready to go home, but I will miss all of the help that the staff provides for us.  It will be a big adjustment for us, but it will be worth it.  I will be healthy and whole and a great mom for my boys.

Day 15, May 23

Going home today!  Bittersweet for sure.  I will miss these people that have inspired me and shared their stories with me.  I will miss the support and the unconditional love.  I have found some forever friends for sure.  I will be happy to see my boys though.  All three of them.

Dr. Pedro Cervantes Macchetto, Me, and Mom

Most of our group minus a couple...

Magdalena the nurse at CNV is hilarious!

Me and Angie

Angie, Mom, Me, and Val

Me, Mom, Barb, and Warren

Me, Mom, Dilon (the brilliant biologist with his ridiculous good looks and his lion-like mane) and Emily (the equally brilliant Physician's Assistant) 

Me, Felix (the coordinator of CNV), and Mom

Me, Rachelle, and Mom

Me, Terry, Mom, and Donna


Thursday, June 6, 2013

My Recovery and Surgical Pathology Report

I was lucky in that I never really had any pain.  Of course I sometimes was uncomfortable, but that was about it.  I took the pain medication they gave me for less than two days.  I started to get a rash, and I thought it may be the hydrocodone or the anesthesia.  Either way I didn't really need it, and it was controllable with just Tylenol.

I was super tired, and for the first time in a long time I had a great excuse to take a nap.  I took advantage, and I tried to nap a lot.  I went between my house and Mom's so that I would have someone with me all the time and also so Mom could accomplish her own things.  My mom was there with me through it all.  I couldn't have done it without her.

Showers were a challenge.  Lucky for me my surgeon's office had provided me with a pink ribbon-like necklace with a hook on the bottom part that I could just attach the  drains to so they wouldn't just hang loose and pull while I took a shower.  This was so useful in so many ways.  Without it showers would have taken much longer and possibly have been painful.

It only took two days to get the verbal pathology report from the surgeon.  He called me late on a Friday. I was in the car on the way to my mom's house, and I didn't get the phone quick enough.  He left a message and gave me his cell phone number and said to call him anytime.  This made me a bit nervous. Once I got to my mom's I got settled, checked my feelings, and I made the phone call.

He answered right away, and he said he had bad news.  He said that of the 31 lymph nodes he had taken all 31 of them were positive for cancer.  This led him to believe that of course there were more out there, and he was sure that if I didn't have chemo quickly it would spread and fast.  He also said that he thought he had clear borders when he cut, but it appears that he cut into some cancerous tissue on the anterior margin of the resection.  He said that on Monday morning he would go through each slide with the pathologist and let me know if there was any major risks here. The last thing he said was that cancer was present in about 90% of my left breast.  Not a real comforting thought at all.

One the other hand, the right side was completely clear of any neoplasm or cancer.  At least there was that good news.

So, that was a bit upsetting.  I felt like I had just gotten my diagnosis all over again.  Why it bothered me so much I'm not sure.  I knew that the cancer was extensive on the left side from the PET results.  I knew that it went to multiple lymph nodes, so I'm not sure why I reacted the way I did.  I'm just glad I got the results on the phone.  He can't see you crying through the phone.

I did tell my mom, but I kept this from everyone else.  Not sure why now, but I'm thinking I did it so people wouldn't be so scared.  I wanted only positives and when there was negative out there it was easy for me to pick up on that.  I needed positive thoughts and energies to keep me going.

I had an appointment with the surgeon the next Thursday, so he would follow up on the pathology report at that time.  In the mean time, my mom had me busy bossing her around while she cleaned and organized my house.  She said the body can't heal when it lives in chaos.  I never thought of that, but I felt like it was true. I know it sure did feel good to have it done.

My mom was good enough to enlist some help in the cause too.  She had her sisters come over twice and together they cleaned my house from top to bottom.  It is amazing what one collects when you have children.  One thing for sure is that we had too many toys, clothes, and clutter.  We gave away so much stuff.

Thursday came soon enough.  I was feeling much better by then.  I wonder if it had anything to do with the small talk the staff and I had.  It really made the surgeon seem more human.  For some reason the subject of losing teeth came up.  I told him that when we were younger we got $0.50 for each tooth that came out naturally, but if we let my dad pull them out with pliers, we got a whole $1.00.

He laughed and shared a story about his own daughter.  She was determined to get her tooth out, so she tried by tying her tooth to some helium balloons, but no luck with that method.  For her second attempt she tied her tooth to an model boat and let her rip.  That didn't work.  Her last attempt involved the family dog.  She tied her tooth to the dog's collar, and then she threw a ball.  It came out very quickly that time.

He did go over the report again and gave me my own copy.  It sounded much more positive in his office than on the phone.  The area he had cut into on the anterior margin was no big deal.  He said the pathologist that went through the slides with him was the best and he said it was just a small focal area of DCIS (ductal carcinoma insitu).  No big deal.





One very good thing at the appointment was that he removed the drain on the right side.  Yay!  This made life so much easier.  I was leaving for the Gerson Clinic the next Wednesday, and he was unavailable to take the left drain out because he would be out of the office.  He did give his nurse permission to remove the left one in his absence if the drainage was less than 40 mL of fluid in 24 hours. This would make traveling easier for sure.

In the event that the drain wasn't able to come out, he said my mom or the doctor at the clinic could remove it.  He wasn't worried about it at all.  He did want to remind me to wear my sleeve to prevent any possible lymph edema, but otherwise I was free to go without any restrictions.

I went into his office the day before I left for San Diego.  My surgeon actually was in the office that day.  Another patient of his was having some difficulties, so he stopped by for a visit.  I think he was actually growing fond of me.(Okay, maybe not, but maybe more intrigued by the situation.)  He encouraged me to seek out a second opinion with an oncologist in the San Diego area while I was there, and I should send him any information if I did.  He also wanted copies of any and all work that they did for me at the Gerson Clinic.  He said he was very interested in what they do.  He had his nurse give me a small stack of cards.  I didn't want to tell him, but I wouldn't be going to see an oncologist.  I just knew I wouldn't have time for that, and I wanted to focus all my time on learning and doing the therapy correctly without any distractions.

Sunday, June 2, 2013

My Surgery

One April 24, 2013, I had a double mastectomy.  On the left side it could be described more like a modified radical mastectomy with lymph node dissection.  There really was not any reason to take the right side, but I am vain enough to want to be balanced.  Plus the fact that I wouldn't ever have to wear a bra again and that I would be more aerodynamic for my running weighed on my mind as well.  Also, if I ever chose to have breast reconstruction they would truly be considered twins.  

Mom met Nick and I at the hospital early in the morning.  We didn't have to wait too long before we were called back to pre-op.  they took my weight, my vitals, and even a little urine.  I got an IV almost immediately, gave me a few drugs to help me relax, and some antibiotics to prevent any infection.  After that it was wait time.  

While we waited, a nurse named Renee from MSTI (Mountain States Tumor Institute) came to visit me.  We had exchanged quite a few messages, but we had never spoken or met in person.  She was a nurse navigator which basically means she walks us through the whole MSTI experience.  If I need any support she can refer to different groups and classes, etc.  She was super kind and helpful.  She also brought me a few gifts.  The first was a charm bracelet with a breast cancer charm.  It was very nice.  The second was a necklace of sorts.  It was a homemade beaded necklace made by a breast cancer survivor.  It was meant to hold and support the drains after surgery.  It was very thoughtful and a great gift.  

A little while later we saw our surgeon.  He marked the correct sides so that he wouldn't take the lymph nodes from the wrong side.  He then went over any questions that I may have.   I din't really have many, so he said he would see me once he was finished with the patient ahead of me.  He said the expected amount of time in surgery would be anywhere from 3-4 hours.  

Before I knew it, they were sweeping me away from my mom and husband and into surgery.  After that, I don't remember much until I came to in the recovery room.  

Pretty quickly my husband was able to come to the recovery room, and before I knew it I was up in my room for the night.  Mom was there waiting for me, and even Dad was on his way over.  I felt pretty good for the most part.  I was just a bit weak and tired which is to be expected.  

Soon everyone left at my request.  Nick needed to be with the boys, and Mom and Dad needed their rest.  I needed my rest too. but that is sometimes hard when your staying in the hospital.  My blood pressure was quite low, so my monitor went off every few minutes.  Also, my nurses did my vitals at least every two hours and gave me pain medication as well.  I couldn't sleep for long.

Soon morning came.  With morning came my surgeon.  He told me that he removed the expected lymph nodes.  He also went on the tell me that he removed more than the expected because of my decision to not do chemo.  I wasn't too happy about that part, but I know he felt like he was doing me a favor.  So I had six less lymph nodes.  I could live with it.  He described the process as chasing the lymph nodes.  If they felt hard, he took them out.  He staged my cancer as 3C.  

Again at this time he encouraged me to think more on the subject of chemo and radiation. I told him I would keep an open mind.  He was happy with that at least.  

He left by saying he would call me as soon as the pathology report came back.  I thanked him, and then I waited to have my sleeve fitted and be discharged.  I was ready to be home.  

My Pre-Surgical Consult

The Monday after my oncology appointment I called my surgeon's office to let them know I was ready for surgery.  I actually chose to have both breasts removed.  If one goes the other may as well go too.  I called late in the evening, so they couldn't schedule it that day.  Also, I couldn't have the surgery until after April 20.  I had signed up for the Race to Robie Creek Half Marathon, and I couldn't back out.  In fact, my diagnosis made me that much more determined to do it.  I had done half marathons in the past, but they were all flat runs.  This one was nine miles uphill, and the last four down hill.  If I could do this half marathon, then I can
definitely beat cancer.

I got a call the next day to let me know they go me in the Wednesday after my half marathon.  The date was April 24.  No problem.  The sooner the better for me.  I just needed to let work know so it could get covered.  I let my boss know that day.

Also this same day I was able to get all my paperwork in for the Gerson Clinic.  They would look over my labs, all of my imaging, and my pathology reports and determine if I was even a candidate for the therapy and being a patient at the clinic.  At one point, I thought I would do everything at home, but after meeting with the oncologist the Friday prior, I knew I needed complete immersion.

Lucky for me I was accepted right away.  I got a call later that day and they told me I could get in on May 24.  Yay!  I asked if they had any cancellations if I could get in sooner, and they told me they would let me know.  To my astonishment, they called me back just two days later to let me know they did get a cancellation.  I could go on May 9.  I told them I had no problems with that as long as they were okay with me having had surgery just two weeks before that.  They said no problem.

I felt like I was acting now.  I had made a decision about my treatment, and I was following through.

My mom and I met with the surgeon the day before my surgery.  He had gotten the results to the PET scan, and for the most part he was happy with them.  There was no involvement in the lungs, bones, or liver.  This is really what we had expected.

Another thing he wanted to discuss was that there was no need to remove both breasts.  I told him I didn't want to look awkward.  He then mentioned that if I wanted I could have just one breast removed now, and then they could take to other one later.  This would ensure that if I chose reconstruction the breasts would look closer to the real thing.  I told him I only wanted to have one surgery to remove my breasts, and I was not really concerned about reconstruction of my breasts at this time.  I wasn't sure I would even reconstruct them at all.

He also got a report from the oncologist.  He was surprised with my decision to say the least.  He did his best to convince me that I was making a bad decision.  He did say that no matter my decision, he would stand by me as a doctor.  That was appreciated.  He asked why I chose this route, and I responded that I felt like chemo was a poison that destroys the immune system rather than build it up.  It is also a known carcinogen.  If I was going to beat cancer I needed to keep my immune system stronger, not weaker.

He did ask my mom what she and Dad thought about my decision.  She responded that they were supportive of whatever I chose.  He really didn't have a comment to that.  I think he was even quite surprised.  I know he was trying to do his job as a doctor and save the patient, and that is good.  If he didn't care what I did and just let me go and do something he felt was dangerous, I wouldn't want him as my doctor at all.

Once he was done trying to convince me of the error of my ways, he asked if I had any questions about the surgery.  I had a few.  Most were very simple questions.  How long would I need to stay in the hospital?  How long did I have to have the drains in?  Could I travel with the drains if need be?  I would only need to stay in the hospital for one night.  The drains usually stayed in for and average of 10 days to two weeks.  There was no problem with me traveling, but if I did travel by plane, he wanted me to be fitted for a sleeve to prevent lymph edema.

Because he was taking out a large portion of lymph nodes from my left arm, there is an increased risk that I could develop lymph edema or swelling in my arm from lymph fluid that is unable to drain.  He said that if I were to fly and experience a change in cabin pressure, the chance of getting lymph edema was increased.  No problem.  A sleeve was easy.

Now for the surgery itself...

My PET/CT

I chose to have a PET/CT done rather than a CT and bone scan.  After speaking with a co-worker that did both, I decided it would be better to do the one scan that would be more diagnostic.  He also told me that many times after the bone scan and CT they would recommend the PET/CT anyhow to follow up.  Rather than risk doubling the radiation exposure I would just do the sure thing and expose myself just once.

I scheduled the PET/CT just two days before my surgery.  I was told that it would be much more diagnostic before.  With all of the healing my body would do after the surgery, we didn't want anything to throw off the results.

A PET scan works by using a radio-pharmaceutical that is attached to glucose.  They do this because cancer needs glucose to survive.  The radio-pharmaceutical will then allow the cameras to pick up the areas that also picked up the glucose (the cancerous areas).  I would go without any sugar for breakfast and eat only foods that were high in protein. This is done because we don't want the cancer to be feeding on any sugar prior to the exam and again throw off the results.  I chose to eat eggs.

The process is pretty simple for the PET/CT.  The first step is to start an IV.  Once the IV is established, the glucose and radio-pharmaceutical are injected.  After that, you have to wait around very quietly.  No movement or talking for about 40 minutes.  At that point you urinate if needed, and then they do a very basic low dose CT.  After this, it will take about 20 minutes to do the PET portion.  It is very important to keep still.  In the end, they merge the two sets of images together to get a more conclusive set of images.

The day before the scan took place I was speaking with one of the PET techs.  She had hired me back in the day, and she was pretty sad about the whole cancer thing.  She would be doing the scan with another co-worker of mine, and she said when she saw that I had good results she would give me a big smile or thumbs up.  I was waiting for this, but it never came.  Instead she was a bit solemn, and she said to make sure to get the results from my oncologist or surgeon rather than signing a form to get the images and results on a disc.  This made things seem pretty bad.

I did wait, but only until the next day.  I signed the proper forms, and I saw that things weren't quite as bad as I could have imagined.  The whole left side was lit up to be sure, but we already knew that.  There did not seem to be any involvement in the bones, liver, or lungs.  The only thing that we could see that we were unsure about was one lonely internal mammary lymph node on the right side.  No problem!




Saturday, June 1, 2013

My Visit With the Oncologist

I had my genetic results back, so it was time to make a decision about my treatment.  Before I had ever gotten a diagnosis, I knew that I was not going to have chemo or radiation done.  It was something that I had  thought about more than once.  I knew that I needed to really study and figure out the best alternatives for me.

I had started reading a book called "Cancer Free" by a man named Bill Henderson.  He was featured on the film "Cancer is Curable Now", and he seemed like he had done a lot of research on alternatives to the traditional stuff.  His research had lead him to believe that diet and supplementation alone could cure cancer. He had multiple followers on the subject, and many of them claimed that they had cured their cancer this way.  Amazingly enough, Mom just happened to have his book, so I started reading that.

Also on the same film they interviewed a woman named Charlotte Gerson. She was the owner and operator of The Gerson Institute.  Her father (Dr. Max Gerson) had come up with a diet in the 1920's to prevent his migraines.  Through coincidence, he prescribed this diet to a cancer patient that also had migraines.  Not only did this diet help or cure the migraines but it also apparently cured the same patient's cancer.  When he found out this piece of information, he then prescribed the diet for numerous cancer patients.  He had great success with this diet, and started to prescribe it for a variety of different ailments.

I had plenty of information to look through, and I also had many sources to go to for help.  I saw a local Osteopathic doctor and also a Naturopathic doctor.  They both prescribed basically the same thing as Dr. Gerson and Bill Henderson.  I just didn't know exactly where and how to start.

Because I was putting off surgery (I wasn't really excited about losing a large portion of my lymph nodes), my surgeon suggested that I see an oncologist.  I agreed that I should do something as well.  He referred me to one, and I saw her a few days later.  My mom, my husband, and my younger brother all came with me.  I was prepared for her to say I needed surgery, chemo, and radiation, but I was not wholly ready for some of the rest.

She started by going over my pathology results and then followed with the chemo and radiation bit since I didn't want surgery immediately.  I asked her at that time if she was familiar with any alternative practices.  She said she was not schooled in them and did not recommend them over conventional treatment.  She went on to emphasize to me that the treatments she recommended were all studied thoroughly and were the top of the line.  They were proven time and again to be the best.  She said that if I do a natural approach, there's not way to know what will happen because they do not publish and have peer reviewed studies, etc.

This was very difficult for my husband and mother I could see.  The oncologist could also see this.  She then asked my mom how she was holding up.  She became a bit emotional, and then so did my husband and I.  At this time she took the opportunity to have me think of my children.  That was a tear jerker.  I could tell she truly cared, but it was just not what I felt was right for me.

Then she took another tactic.  She said she could see that I was determined.  She then said that whatever I chose to do, I should do it quickly.  She felt that what I was currently doing felt to her to be no action at all.  She said that I needed to do my research quickly and then act on it quickly.  Don't wait around.  In this I felt she had a point. I was eating healthy and making healthier choices, but I wasn't all the way there yet.

She did have a couple of recommendations then at this time.  She recommended that I have either a CT and a bone scan done or a PET/CT done to look for metastasis especially since they already knew there was lymph node involvement.  Then she encouraged me to look up a local naturopathic doctor that had worked with them collaboratively while doing chemo and radiation.  She wanted me to speak with her and get another opinion on my treatment plan.  I agreed to both.  They sounded reasonable.  I also was interested in a baseline in imaging so that I could show them that I really was recovering.  It was the only way to really know.

The weekend after this appointment was very hard on the family emotionally.  My husband Nick was scared to death, and this made him a little angry in a sense.  He wanted the lumps gone for sure, and then from there he felt he could be more supportive.

Also, my grandmother was told of my diagnosis after this appointment.  I had wanted to keep this from her as I didn't want her to worry and I felt like I would not have to go through the bulk of the suffering that most cancer patients would.  Once she found out I went for a visit the next day.  We spoke of many things, but at the end she told me I needed to have the surgery and after that the rest was up to me and I would be fine.

After this I felt like I needed to have the surgery.  I felt like I needed to do it for the family, but I also felt like I needed to do it for myself.  I could have the masses removed and then anything that was left my immune system could easily get rid of the rest.  I felt confident and good in this decision.  Now I just needed to figure out how to do the diet and detox to boost the immune system.

After a bit more research, I chose to do the Gerson Therapy.  They have a clinic for patients in Tijuana, Mexico, and the reviews that I found for it were quite positive.  I had a  good feeling about this, but I needed to turn in some paperwork first and wait to be accepted.  There was no telling how long that process would take.  I was hoping I could go pretty quickly after my surgery, and to my delight I got just that!